Inside an SBS Care Team: How Multidisciplinary Experts Improve Outcomes
A Short Bowel Syndrome (SBS) diagnosis can feel overwhelming for parents, but you are not alone in this journey. Children with SBS require specialized, coordinated care—which is why having a strong multidisciplinary team is crucial for long-term success.
SBS is a complex condition that affects digestion, growth, hydration, and overall health. Managing it requires expertise from:
- Pediatric Gastroenterologists – Oversee gut function, TPN, and enteral feeding.
- Dietitians & Nutritionists – Customize feeding plans for growth and adaptation.
- Pediatric Surgeons – Perform life-saving surgeries and bowel-lengthening procedures.
- Nurses & Nurse Practitioners – Provide hands-on care and education.
- Social Workers (LCSWs) – Help with insurance, medical advocacy, and emotional support.
Each specialist plays a unique role, but together, they form a comprehensive support system that gives children the best chance to thrive.
The Core Team: Who’s Involved in SBS Care?
Every child with SBS requires a personalized treatment plan tailored to their unique needs. Here’s how each expert contributes:
1. The Pediatric Gastroenterologist (GI Specialist)
The GI doctor is the primary quarterback of SBS care, monitoring:
- Nutrient absorption & gut function
- Managing TPN vs. enteral feeding
- Assessing intestinal adaptation & medication needs
- Preventing and treating complications like bacterial overgrowth
Why It Matters: A GI specialist will adjust feeding plans, monitor hydration, and track growth over time—critical for reducing dependence on TPN and ensuring optimal health.
Find a GI Specialist Near You: North American Society for Pediatric Gastroenterology, Hepatology & Nutrition (NASPGHAN)
2. The Dietitian & Nutritionist: Customizing Nutrition for Growth
Since malabsorption is a key challenge in SBS, nutritionists create specialized plans based on:
- High-calorie & high-protein intake for growth
- Modifying fat absorption (e.g., MCT oil vs. long-chain fats)
- Hydration strategies to prevent electrolyte imbalances
- Gradual transitions from TPN to enteral feeding
The Goal: To help children tolerate more oral/enteral nutrition so they can rely less on IV nutrition.
Nutrition Support for SBS Families: ASPEN – American Society for Parenteral & Enteral Nutrition
3. The Pediatric Surgeon: Life-Saving & Bowel-Lengthening Procedures
For some children, surgery is necessary to either remove damaged bowel (due to NEC) or to improve nutrient absorption.
Common SBS Surgeries:
- STEP (Serial Transverse Enteroplasty) – Lengthens the intestine to improve absorption.
- Bianchi Procedure – Increases surface area for nutrient uptake.
- Ostomy & Reversal Surgery – Helps with temporary gut healing and waste management.
Surgical advancements, such as regenerative tissue therapies, are shaping the future of SBS treatment.
Learn More About Pediatric SBS Surgery: American Pediatric Surgical Association
4. The Nurse & Nurse Practitioner: The Bridge Between Care & Family
Nurses are at the heart of SBS care. They:
- Educate parents on TPN, tube feeding, and stoma care
- Monitor for dehydration, infections, and feeding tolerance
- Provide hands-on training for at-home care
Your nurse is one of your best resources—ask questions and don’t hesitate to reach out for help!
Connect With Pediatric SBS Nurses: Association of Pediatric Gastroenterology & Nutrition Nurses (APGNN)
5. The Social Worker (LCSW): Navigating Insurance, Advocacy & Emotional Support
SBS care is expensive, and insurance battles are common when it comes to getting coverage for:
- Medical formula & feeding supplies
- Home health nurses & equipment
- Hospital stays & surgical interventions
A Licensed Clinical Social Worker (LCSW) helps families:
- Apply for Medicaid, CHIP, or financial assistance programs
- File insurance appeals for denied services
- Find emotional & mental health support for parents
Did You Know? Many social workers can also help connect families with peer support groups for SBS.
Get Advocacy Help: Patient Advocate Foundation
The Role of Medical Innovation in SBS Care
As medical technology advances, SBS care is shifting toward regenerative therapies that focus on:
- Encouraging the small intestine to regenerate tissue
- Reducing dependence on long-term TPN
- Improving intestinal adaptation outcomes
Eclipse Regenesis & Regenerative Medicine
Pioneering efforts like Eclipse Regenesis are at the forefront of stimulating new intestinal growth, potentially offering a less invasive solution for SBS in the future.
Explore the Future of SBS Treatment: Eclipse Regenesis
Conclusion: The Power of a Strong SBS Care Team
The right care team can dramatically improve your child’s health, quality of life, and long-term prognosis. By working together, GI specialists, surgeons, dietitians, nurses, and social workers create a comprehensive support system for families managing SBS.